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The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world. The WFH is an international patient organization with national member organizations in 109 countries. |
Throughout our history of over 40 years we have worked to ensure the safety of treatment for hemophilia and other inherited bleeding disorders, educate care-givers and patients and build a coalition of manufacturers, government and patient organizations to reach our goal of “Treatment for All.” Visit our website: http://www.wfh.org
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International Patient Organisation for Patients with Primary Immunodeficiencies (IPOPI)
IPOPI is an international organization whose members are national patient organizations for the primary immunodeficiencies (PID's). It was formed to benefit and serve its members and patients with primary immunodeficiencies. |
Its pupose is to unite the experience, expertise, resources and influence of its members in order to achieve worldwide improvement in the care and treatment of patients with PID's. Visit our website at http://www.ipopi.org
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The ITP Support Association Founded in June 1995, its aims are to promote the welfare of ITP patients, fund clinical research and to collaborate with the medical profession in collating and disseminating clinical data. The Association provides patient support, a contact network, organises annual conventions, seminars for health professionals and publishes numerous booklets and facsheets on ITP related subjects in addition to its quarterly newsletter, The |
Platelet. Assisted by 6 eminent medical advisors it is the only UK organisation supporting patients with ITP. The ITP Support Association is a non profit-making registered charity, and all Association workers are volunteers. Visit our website at http://www.itpsupport.org.uk
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HAEI – International Patient Organization for C1 inhibitor Deficiencies - is a global organization dedicated to raising awareness of C1 inhibitor deficiencies around the world. It is a non-profit international network of national HAE patient Associations. |
HAEI is established to promote co-operation, co-ordination and information sharing between HAE Specialists and National HAE Patient Associations in order to help facilitate the availability of effective diagnosis and management of C1 inhibitor deficiencies throughout the world.
Our purpose is to join the efforts and experience of the global HAE community to achieve optimal standards of care and treatment for all those patients affected by C1 inhibitor deficiencies. Please visit our website: http://www.haei.org/
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Supporting organisations